Preventing Infant Deaths from Congenital born with a CCHD can appear healthy at first and be ...
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Previniendo las muertes de niñas y niños pequeños, a causa de malformaciones cardiacas congénitas cdc

Published on: Mar 4, 2016
Published in: Health & Medicine      

Transcripts - Previniendo las muertes de niñas y niños pequeños, a causa de malformaciones cardiacas congénitas cdc

  • 1. Preventing Infant Deaths from Congenital born with a CCHD can appear healthy at first and be sent home with their families before their condition isHeart Defects detected. These babies are at risk for serious complications and death within the first few days or weeks of life and often require prolonged hospitalizations and emergency care. Newborn screening for CCHDs can identify some babies with these conditions before they show signs of illness. Once identified, these babies can be seen by pediatric cardiologists and can receive specialized care and treatment. Treatment can include medications and surgery. Detecting and treating CCHDs soon after birth can help to prevent death and disability early in life and can potentially improve the long-term health of individuals with these conditions.Kristine and Cora McCormick In September 2011, U.S. Department of Health andKristine Brite McCormick had a healthy pregnancy and Human Services Secretary Kathleen Sebelius approvedgave birth to her daughter, Cora, on November 30, adding CCHDs to the recommended list of conditions2009. Kristine and her husband soon brought baby Cora that are included in newborn screening. As newbornhome, after getting a clean bill of health at the hospital. screening for CCHDs is implemented throughout theA few days after arriving home, Kristine was feeding United States, the Centers for Disease Control andCora when the baby suddenly stopped breathing. Prevention (CDC) will play an important role in helpingKristine and her husband rushed Cora to the hospital in the public understand the effectiveness of suchminutes, but it was too late. Cora was gone. “We screening. The National Center on Birth Defects andlearned that she had an undetected congenital heart Developmental Disabilities (NCBDDD) at CDC is helpingdefect from the coroner,” said Kristine. “Neither of us assess how well screening programs are detectinghad ever even heard the term.” CCHDs. NCBDDD also is researching the costs associated with CCHD screening. These activities will help statesIn the United States, every 15 minutes a baby is born make decisions about adding these conditions to theirwith a congenital heart defect, the most common type existing newborn screening programs and will provideof birth defect in this country. information that will be helpful for states with new or proposed CCHD screening programs.After Cora’s death, her parents learned about newbornscreening for critical congenital heart defects (CCHDs) “While we’ll never know for sure if it would have madeusing pulse oximetry. CCHDs are congenital heart a difference for Cora, we sure wish she’d had the simpledefects that require surgery or intervention in the first screening. I hope for a day when no mother finds outyear of life. Pulse oximetry is a simple bedside test to about her child’s heart defect from the coroner,”determine the amount of oxygen in a baby’s blood and Kristine said. “My ultimate hope is that one day no babythe baby’s pulse rate. The test is done using a machine is born with a broken heart and that congenital heartcalled a pulse oximeter, with sensors placed on the defects are prevented in every pregnancy.”baby’s skin. The test is painless and takes only a fewminutes. Low levels of oxygen in the blood can be the For more information on screening for CCHD, visitfirst sign of a CCHD. Cora’s mother Kristine wants to sure that other parents know about newborn eening.html.screening for CCHDs. In Indiana, where the McCormickslive, a new law requiring newborn screening for CCHDsis known as Cora’s Law, after Cora McCormick.Congenital heart defects account for 24 percent ofinfant deaths due to birth defects. Like Cora, babies

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